I don’t know how many of my readers know this but I was born with a severe-to-profound hearing loss. This means that without my hearing aids, I’m lucky if I hear a siren wailing or other similar high-pitched, loud sounds. With my hearing-aids, I do pretty well, especially if I have a good pair of hearing aids, combined with lip-reading. In my family, my mother has a progressive hearing loss and my little sister is hard-of-hearing. My two older sisters have normal hearing. This means, for me, that our baby will have a 50% chance of being born deaf.
Henry and I have been having lots of “what-if” discussions and last night, we watched Sound and Fury, a documentary about two families (the husbands are brothers, one deaf, one not) divided by the issue of cochlear implants. The arguments are emotional and defensive on one side, and rational and pragmatic on the other side. My mother would like me to get a cochlear implant but I’m not keen on the idea. For one thing, I’m too old and I don’t have the patience to relearn language, which is what happens when a person gets the implant. Second, my hearing aids work for me. It’s no miracle device but I can hear little sounds like fans blowing and horns honking.
As for our kids, we’re on the fence about cochlear implants. What we agree on at this point, is that if we have a deaf child, he will be taught both speech and sign. My parents made the decision to teach me only speech, and it was the right decision at the time but to this day, I have no deaf friends and I don’t know sign language. I don’t necessarily need deaf friends but when I was a kid, my social life existed in a state of limbo. I straddled the hearing and deaf worlds, not fully accepted by either until I was much older, after college. I guess I had to wait for everyone to grow up! Being deaf also made me socially retarded in a lot of ways. Hearing people, I think, take for the granted the social cues they pick up just by listening and being able to hear what’s going on. For deaf people, social cues have to be taught or witnessed visually.
Education and schooling is another issue. I went to the Clarke School for the Deaf in Northampton, for a year, in 5th grade. The Clarke School is an oral language school, so no sign was used or taught (by the teachers, anyway…I learned plenty from my dorm-mates and classmates!) It was a great social experience for me, but I only stayed for a year because academically, it wasn’t rigorous enough. I’ve been mainstreamed since 1st grade, so I was in “regular” classes moving at the same pace as my hearing peers up until that point. One of the subjects in Sound and Fury expressed the oft-stated sentiment that schools for the deaf are horrible, and the average deaf high school graduate reads on a 4th grade reading level (did you know that most major newspapers are written at a 6th grade reading level or higher?) These are statistics I grew up with and these are the statistics that drove my parents to choose an oral-language program for me. These are the statistics that I want to avoid for my own children. A deaf child with educated parents is much better off in this situation, and as a teacher, I have the advantage of being able to confidently and knowledgably assess the strength of an educational program. Henry and I are moving to the Pioneer Valley area next year, where the Clarke School is located. If we have a deaf child, most likely, he will attend Clarke’s early-childhood program and receive speech therapy there but we will also seek out programs to learn sign language. I don’t want my child to straddle. I want him to be able to leap the fence at will, and be comfortable on either side.
The documentary was interesting and thought-provoking. I recommend it to anyone, regardless of their experience with deaf people. The arguments and emotions will be familiar to anyone who comes from a deaf family, has a deaf child, sibling or parent.